Today we met some of the new members of Team Judy. Dr. Hoda, the oncologist, spent quite a bit of time explaining what B-cell prolymphocitic leukemia is. He then told us they have to wait for more lab tests to see if I have or do not have the TP53 variant of the disease, which would call for a very different treatment.
So I did not start chemo today. I still feel fine!
My nurse, Megan gave me lots of pills and explained to us the ins and outs of hospital living. She showed us where the secret stash of Lorna Doone cookies is! Yum!
I had an echo cardiogram, an EKG and a chest x-ray. I also had a PICC line put in with three ports in it. The entry point has been hurting all day, and makes me not want to use my right arm or my broken left one! I got a hot blanket an hour ago, and that helped a lot!
There has been a constant stream of people in my room, including a respiratory therapist who taught me how to blow in a tube 10 times every hour!
The nurse practioner, Bret, has been very helpful and spent a lot of time talking with us.
Visitors are welcome, but when I go out for a walk I have to wear a special robe and mask. It is very hot under the mask!
Ed has been my rock all day! He spent several hours in a hard chair filling out forms!
My first room was on the small side, with only one chair, but when something opened up they gave me s new room.
The new room has a couch, a big chair and a medium sized chair! Lots of room for visitors! And more room for Ed to relax in tomorrow!
Thank you so much for posting this. I have been wondering all day how you were doing. I have never been more grateful for your blog than right now. I love your new team that will be taking care of you. I love your big room with the couch and chairs for visitors. We look forward to coming up on Sunday afternoon. I am so glad that you have a strong team of care givers on team Judy!
ReplyDeleteWish I was closer, I would come visit you.
ReplyDeletePhyllis
We are headed back to UT about Dec 20. We will see how you are doing then set up a time to come visit if your up for that.
ReplyDelete