Ed to the rescue!

Ed has been scouring the internet for new options to treat me. My WBC went up to 269 today. We've chosen to go on a three times a week treatment of Campath in the short term. MY WBC might have gone down slowly on Campath, but at least it didn't go up!

We met with the nurse today, and Ed gave her all his notes to pass on to the doctor. There are other choices out there. It turns out Crystal Bush and John Nuttall are also finding the same articles. I have a rare diease, PBLL, but there are a few successes out there. I want to be one of them!

I still feel super weak and am low in energy, but not in a lot of pain. My PICC arm gets better every day!


Thanks for your well-wishes! They keep me going!