Thursday, December 1, 2016

Whistling by the Manger

Ed just finished mixing our latest Christmas album. Between my broken wrist and my leukemia, we might not be able to send out CDs this year. If any of you would like to listen and/or download the new tunes, it is available at www.whistlingprairie.com/whistling-by-the-manger/!


We have some great new tunes on it, and we think you'll enjoy it!



Team Judy at LDS Hospital

Today we met some of the new members of Team Judy. Dr. Hoda, the oncologist, spent quite a bit of time explaining what B-cell prolymphocitic leukemia is. He then told us they have to wait for more lab tests to see if I have or do not have the TP53 variant of the disease, which would call for a very different treatment.

So I did not start chemo today. I still feel fine!

My nurse, Megan gave me lots of pills and explained to us the ins and outs of hospital living. She showed us where the secret stash of Lorna Doone cookies is! Yum!

I had an echo cardiogram, an EKG and a chest x-ray. I also had a PICC line put in with three ports in it. The entry point has been hurting all day, and makes me not want to use my right arm or my broken left one! I got a hot blanket an hour ago, and that helped a lot!

There has been a constant stream of people in my room, including a respiratory therapist who taught me how to blow in a tube 10 times every hour!

The nurse practioner, Bret, has been very helpful and spent a lot of time talking with us.

Visitors are welcome, but when I go out for a walk I have to wear a special robe and mask. It is very hot under the mask!




Ed has been my rock all day! He spent several hours in a hard chair filling out forms!

 My first room was on the small side, with only one chair, but when something opened up they gave me s new room.

The new room has a couch, a big chair and a medium sized chair! Lots of room for visitors! And more room for Ed to relax in tomorrow!




Wednesday, November 30, 2016

One last Mabel Fix

Brittany came up tonight to be with us and give us one last evening with Mabel before we go to the hospital. Kids will be off limits while I'm having chemo.

We made our first visit it to the Blue Lemon Restaurant, which is technically the closest restaurant to our house. There is no restaurant in the entire city of Alpine!

We had a great dinner, and I even had dessert! I might be losing my appetite next week, so I might as well bulk up!









Mabel cheered me up. So did a visit from Bishop Shippen and my son-in-law, John, who joined with Ed to give me a blessing before going to the hospital. It was a great comfort, and I'm going in peace and full of hope tomorrow!

Judy Goes to the Hospital

We finally got a diagnosis on my leukemia:  B-cell prolymphocytic leukemia . It is extremely rare and extremely aggressive. I still feel fine, but will report to LDS hospital in Salt Lake City tomorrow morning at 8 a.m. to start a hospitalized treatment of 2-4 weeks, depending on how I respond to the treatment. I'll have a new set of doctors who have more knowledge about this particular disease. We really don't know much about it, but I imagine we will be finding out a lot in the next few days!

I'm taking my good luck charm to the hospital with me. It is Judy Hopps, from Zootopia! (Thank you Crystal.) What could be better luck than a bunny named Judy?

Monday, November 28, 2016

Wride Time

We were lucky to have the Wrides stop by for an hour yesterday. They live in Idaho, but were in Utah to hear their granddaughter report her mission. The don't look a day older than they did when we lived next door to them in Parker. How can they have a granddaughter that old?

It was good catching up on old times as well as new! Parker was a magical time in our lives, and the birthplace of family band as well as old lady band! Good times! Thanks for stopping by!

Sunday, November 27, 2016

Aquarium

Ed and I joined the Nuttalls for a trip to the aquarium yesterday. It's always fun to spend a day with Mabel.

Mabel actually has a little sign language movement for the word "fish" which includes moving her hands in a fishy motion. It was fun watching her make this movement at each tank!

She was amazed at the sharks swimming right over the top of us!

She liked the tree frogs!


















She made her cute tiger sound when she saw the leopards!

She rode on the back of a sea turtle!

It was fun for us to see the aquarium, but mostly we were interested in getting a reaction out of Mabel!

It was smaller than the Baltimore aquarium, but just as much fun!


Afterwards we went over to Brittany's and John's to sit by the fire and listen to Christmas music. Ed had fun dancing with Mabel.

My broken wrist kept me from dancing with her, but I still had a good time reading to her! We sure like our Mabel time!

Friday, November 25, 2016

Giving Thanks


We had a wonderful Thanksgiving yesterday, with my mother, Brittany, John and Mabel, and the Nuttall family. It is nice we enjoy Brittany's in-laws and are able to share some holidays together. Marti and Ellis had their son Tim, and his family in town, as well, so it made a nice group of 14, which just barely fit in our new dining room!

Ed had his annual fight with the turkey, but it turned out great, despite the fact that the natural gas BBQ didn't heat as fast as the propane we've used for the past several yeas!

After dinner we made everyone (except Grandma who couldn't be coerced) play a game of pool.


By pie time we had all worked up an appetite again! Marti brought all the pies, and they were delicious!
















I picked pecan and chocolate French silk pies, my favorite! There was still plenty left when Brittany and Grandma finally straggled in for a serving!

Mabel was as cute, as ever! She recognizes animals and makes animal sounds. It was fun to show her our Christmas trees!



















In the evening we drove over to the Riverwoods Mall and walked around just to enjoy the lights! Such a beautiful and happy time of year!