Thursday, September 20, 2018

Hiking Ladies Lunch

After labs yesterday morning Ed dropped me off at the Blue Lemon for a birthday lunch with the hiking group. I hope to be able to hike with them in a few weeks. But for yesterday I was only just strong enough to sit in a chair and enjoy lunch.  It was a very fun luncheon. 

Ed and I were very encouraged by my lab results of WBC at 66k. To celebrate I went home and took a long nap after lunch.

Wednesday, September 19, 2018

Book Club The Other Einstein

On the way home from the hospital yesterday I stopped off at book club, which my neighbor Maureen was hosting. I was 45 minutes late, but really enjoyed talking about the book, The Other Einstein, which was historical fiction based on Einstein's first wife. 

The infusion went fine in the morning. I had more Bendamustine and 100 mg of Rituximab. We were especially happy with my labs, as my WBC went down to 87.94. Double digits! 

These 7 a.m. appointments are exhausting! We're glad my labs are at 10 today!

Monday, September 17, 2018

Treatment 4

After a relaxing weekend in which I was even able to attend church yesterday, it was back to the infusion center today.  I was happy because they gave me a bed rather than a chair! I had my second infusion of bendamustine and my fourth infusion of rituximab.  They had to abort the rituximab after only 80 mg. (They had scheduled 100 mg.) I developed a fever and chills, so they stopped the infusion before it got worse. They were planning on giving me 700 mg tomorrow, but decided to just give me another 100. I'm both relieved and sad. Relieved to not have to get the larger dose and sad that my body does not tolerate a very important drug.

On a happy note, I had my first visit from Beijo, the therapy dog. He was a sweet Portuguese water dog! Black and white like Coda, but much less excitable!

Saturday, September 15, 2018

Nature Day with the Grandkids

Mabel and Clementine came over yesterday and immediately went on an acorn hunt in our yard!

It is amazing how many acorns our little scrub oak trees can put out! And it amazing how entertaining it was for the girls!

Clementine will do anything Mabel does, and it has been fun watching them become friends and start playing together!

We had a relaxing picnic lunch at the Bowery in Lambert Park.

Then we went for a short nature hike up the rodeo road.

We had Mabel find leaves of six different trees and match them up. She did a very good job of it!

After she glued the leaves on, we rewarded her with our I Love Trees button from the Alpine Nature Center.

We taught her how to play Guess Who in the afternoon. She is on the cusp of understanding it. We're hoping that by teaching her games we like she'll never ask us to play Candyland with her!

During Clementine's nap we gave Mabel a popsicle (against her mother's advice). It was a mess, and she had to wash her clothes and have a bath with soap to get the red out!

During all this Brittany was making us dinner of kale, lentils and butternut squash. It was delicious, and very healthy!

To balance it out she also made pineapple upside down cake for dessert. That made everyone happy!

It was just like old times! We loved all the cuddles and entertainment!

Friday, September 14, 2018

Retiring Life

Ed and I went to see Crazy Rich Asians with Barbara and Kent yesterday afternoon. We decided to do it in style and go to the VIP theater in the District. The chairs not only reclined and were heated, but the staff brought us blankets! It was super comfortable and I was able to stay awake for the whole crazy show!

We had lunch at Cubby's which didn't fill me up, so we also ate a tub of popocorn afterwards at the theater. We were celebrating my labs from the morning. My WBC has been stable at 106 for the past few days, so the doctor gave me three days off! We don't have to go to Huntsman till Monday! The dizziness and weakness still hasn't worn off, and I am not really looking forward to another round of treatment next week!

Thursday, September 13, 2018

Bathrooms and Bills

It's been a while since I did anything productive around the house,  so yesterday I mustered up the strength to clean the bathrooms. It felt good to help out while Ed was outside mowing the lawn.

Afterwards Ed opened the mail--a stack of EOBs from the insurance company.  It's hard negotiating all the paperwork when you are in a weakened condition! I'm lucky to have Ed by my side!

Wednesday, September 12, 2018

Kaylene Visit

Kaylee dropped in all the way from Maryland yesterday to help me through the second half of my rituximab treatment. It was fun catching up and helpful to be distracted during the infusion!

The doctor only had them give me 100 mg, and started at a slower pace and ramped up slowly. For the first time I didn't have a reaction. I have to go for blood tests every day now, but get a break till my next treatment on Monday!