GOOD NEWS: I don't have to wear the brace anymore!
BAD NEWS, I need some serious therapy to regain my range of motion!
The initial UofU pathology report indicated BPLL, which was why I was hospitalized last week. The pathologist at LDS hospital, looking at the same slides believes it is probably an atypical CLL, possibly with a TP53 variable.
They recommend getting a new report from Massachusetts General to confirm the diagnosis. We are still waiting for TP53 results.
GOOD NEWS: They took out my PICC!!!!! They took me off most of the medications, including the dizzying Hydoxyurea! I am no longer neutropenic, and can go out in public without a mask!
BAD NEWS: We have to wait several weeks more to find out what I have!
On a side note, we have an appointment with Huntsman tomorrow. Will they stand by their own pathology report (UofU), or will they agree a third opinion is called for? In the meantime, I'm hoping for a good night's sleep tonight!
Other GOOD NEWS: They gave both Ed and I orange juice and cookies after I got the PICC line out!