Thursday, December 8, 2016
Malawi and Halwani
We stopped at Malawi Pizza for a late lunch on the way home. I get Malawi and Halwani mixed up. One is African and the other Hawaiin!
He spent the morning sorting my pills back into bottles.
Timpanogas Regional in Orem
Mountain Point in Lehi
LDS Hospital in SLC
Mercy in Iowa City
Huntsman Cancer Institute in SLC
That is so painful, and I appreciate him doing it for me. He ALMOST has my social security number memorized. I think that is good. I've known his by memory for 35 years now!
I'm doing some therapy by myself on the wrist (until I can get in with a real therapist next week) and applying a heating pad to the point of insertion of the PICC line on the soft flesh of my upper right arm. But, I can actually feel the ghost of the PICC line up the arm and into the chest! I imagine time rather than therapy will heal that wound!
Ed calls me his T-Rex!
He also said that although I am atypical, that doesn't mean much. They would just watch and see. Maybe no treatment is the best option. And if I am treated, perhaps a "novel agent" like Ibrutinib, might do the trick. It is not chemo and has no chemo side effects. You just take a pill at home! He said my good health was an indicator of how they would treat it!
I'm excited, looking forward to feeling good enough by Christmas to enjoy the time with with my family. The girls (and boys) are coming out to make a new Christmas CD!
I wish this month had not been so awful, but I am grateful for the many things I have come to know during our trial. I also hope the worst if over!